Camryn had a great Christmas. She must've been on Santa's "very nice" list! She's progressed so much over 2008. Except for talking to teachers, she's totally herself at school. She just seems to have a mind-block against talking to teachers. The odd thing, though, is that she will talk sometimes to substitute teachers... crazy! I think it must have something to do with her perceived expectation to talk to her teachers (from them and me, too, I'm sure). As we've been off for Christmas vacation, it seems that every store we go to, the cashier will ask her if she had a good Christmas. Mostly, she will do nothing, so of course, I answer for her. But, sometimes if I prompt her, she will slightly nod her head yes. Still a big step for her. Around family from both sides, she was pretty comfortable with everyone hearing her voice. Around my brother and his family (two of which are children), she talked freely. Of course, she's still never directly talked to my brother, but freely lets him hear her voice. Around Gary's mom's family, again there were children there, so she was freely talking. However, again, she wouldn't talk directly to an adult other than MiMi or Opa. She would communicate non-verbally to most people, though. With Gary's dad, however, there were no children there, so she stayed pretty quiet. So... just a little reflection/update for you. Thanks for loving and caring for Camryn. Hope you have a blessed new year!
Tuesday, December 30, 2008
2008 Reflections
Camryn had a great Christmas. She must've been on Santa's "very nice" list! She's progressed so much over 2008. Except for talking to teachers, she's totally herself at school. She just seems to have a mind-block against talking to teachers. The odd thing, though, is that she will talk sometimes to substitute teachers... crazy! I think it must have something to do with her perceived expectation to talk to her teachers (from them and me, too, I'm sure). As we've been off for Christmas vacation, it seems that every store we go to, the cashier will ask her if she had a good Christmas. Mostly, she will do nothing, so of course, I answer for her. But, sometimes if I prompt her, she will slightly nod her head yes. Still a big step for her. Around family from both sides, she was pretty comfortable with everyone hearing her voice. Around my brother and his family (two of which are children), she talked freely. Of course, she's still never directly talked to my brother, but freely lets him hear her voice. Around Gary's mom's family, again there were children there, so she was freely talking. However, again, she wouldn't talk directly to an adult other than MiMi or Opa. She would communicate non-verbally to most people, though. With Gary's dad, however, there were no children there, so she stayed pretty quiet. So... just a little reflection/update for you. Thanks for loving and caring for Camryn. Hope you have a blessed new year!
Saturday, October 25, 2008
Update
Sorry I haven't posted in a while. I guess there really hasn't been much to write about. Camryn has been talking to all her friends and most classmates since the beginning of the school year, but she has yet to talk to her teachers. She has talked on occasion to her P.E. teacher, however. Her grades are not what they should be. It seems like everytime we get her S.M. under control, she becomes more social (the idea) but her grades fall. Please continue to pray for her.
Monday, August 4, 2008
Summer is Coming to an End
Monday, June 9, 2008
Camryn's Kittens
Our kittens are five weeks old, but if cats do indeed have nine lives, I'm pretty sure they've used up at least half of them... several long stories that I don't have the time and/or energy to go into here, but anyway, here are some pictures of them Camryn and I took a couple of days ago when Camryn decided to play "dress-up" with them. Notice that the one wearing Barbie's nightgown is the boy. The girl wasn't as into it!
Update
It's been over a month since I last updated this blog. Forgive me... I've been busy with end of the school year stuff, but now, school's out for the summer!!!
Camryn has had many, many successes over the past month. I'll do my best to try to remember as many as I can.
* Although we didn't get to go to her school awards program, (too much going on that we didn't realize when it was), Camryn was able to walk onto the stage to accept her awards. They sent a picture home with her, though. She definitely had on her "S.M. face," but the most important thing is that she did it!
* I had to work last Monday and Tuesday finishing up the school year, so my mom took Camryn to VBS those first two days. There wasn't an opportunity, as a result, for me to go in, give her teachers one of my little SM cards explaining why Camryn may not talk, which has been my standard procedure for the last several years. But when I took Camryn in on that Wednesday morning, she went right in and sat with her group. The next morning, I figured out that I could use the car rider line to drop her off. I had asked her if she had talked to any of her teachers. She said no, but that she had talked to the person handing out name tags since she had to tell them her name. So, I drove through the car rider line, she got out immediately (no hesitation), and walked up to the name tag table. She must've told the lady her name because she immediately started looking for the appropriate name tag.
* She participated in her VBS program last Thursday night. She was placed front row/center on the stage. I wasn't sure how that was going to work. Last summer, I would've had to tell them to move her to a different spot. Anyway, she didn't sing, but she did most of the movements. That is, until she spotted me watching her. Then she would stop and give me this really mean-looking stare, so then I would have to purposefully look at someone else performing until she looked away. When she caught me looking at her again, we'd go through the same scenario. For the time that she was sitting on the stage watching the rest of the program, she continued to motion to me that she was cold. She must've done this about 10 times. Of course, there was nothing I could do about it, but I was amazed that she would communicate with me in front of such a large crowd, even if it was non-verbal.
* She has been talking to more of her friends. There is a little girl in her Sunday School class that she knew from Kool After School that she invited to sit with us during church yesterday. Before this, there was only one little girl at church she would talk to.
* Last Saturday morning, I loaded up my truck with garage sale stuff to take to my parents' garage. I had already told Camryn that I would need her to go into the house (they weren't there), go down the stairs to the garage, and click the button to open the garage door. While this type of action is not related to her SM, it is very much related to her overall anxiety. I really didn't think she would do it... walking into a dark house, going down a set of dark stairs, and opening a door to a dark garage... but she amazed me and did it, without any hesitation!
So, I think this will give you a good picture of Camryn's recent progress. We are extremly blessed with all she has accomplished since beginning her medication at the end of March. I'm still not naive enough to think that her SM is "cured." Not talking is only a symptom of her overall anxiety, and we continue to see her struggles with anxiousness in other areas of her life.
So, please do me a favor... STOP for just a moment and thank God for anwering our prayers about Camryn talking in school and please pray that He would continue to loosen the chains that bind Camryn in the form of anxiety. THANK YOU SO MUCH!!!
Camryn has had many, many successes over the past month. I'll do my best to try to remember as many as I can.
* Although we didn't get to go to her school awards program, (too much going on that we didn't realize when it was), Camryn was able to walk onto the stage to accept her awards. They sent a picture home with her, though. She definitely had on her "S.M. face," but the most important thing is that she did it!
* I had to work last Monday and Tuesday finishing up the school year, so my mom took Camryn to VBS those first two days. There wasn't an opportunity, as a result, for me to go in, give her teachers one of my little SM cards explaining why Camryn may not talk, which has been my standard procedure for the last several years. But when I took Camryn in on that Wednesday morning, she went right in and sat with her group. The next morning, I figured out that I could use the car rider line to drop her off. I had asked her if she had talked to any of her teachers. She said no, but that she had talked to the person handing out name tags since she had to tell them her name. So, I drove through the car rider line, she got out immediately (no hesitation), and walked up to the name tag table. She must've told the lady her name because she immediately started looking for the appropriate name tag.
* She participated in her VBS program last Thursday night. She was placed front row/center on the stage. I wasn't sure how that was going to work. Last summer, I would've had to tell them to move her to a different spot. Anyway, she didn't sing, but she did most of the movements. That is, until she spotted me watching her. Then she would stop and give me this really mean-looking stare, so then I would have to purposefully look at someone else performing until she looked away. When she caught me looking at her again, we'd go through the same scenario. For the time that she was sitting on the stage watching the rest of the program, she continued to motion to me that she was cold. She must've done this about 10 times. Of course, there was nothing I could do about it, but I was amazed that she would communicate with me in front of such a large crowd, even if it was non-verbal.
* She has been talking to more of her friends. There is a little girl in her Sunday School class that she knew from Kool After School that she invited to sit with us during church yesterday. Before this, there was only one little girl at church she would talk to.
* Last Saturday morning, I loaded up my truck with garage sale stuff to take to my parents' garage. I had already told Camryn that I would need her to go into the house (they weren't there), go down the stairs to the garage, and click the button to open the garage door. While this type of action is not related to her SM, it is very much related to her overall anxiety. I really didn't think she would do it... walking into a dark house, going down a set of dark stairs, and opening a door to a dark garage... but she amazed me and did it, without any hesitation!
So, I think this will give you a good picture of Camryn's recent progress. We are extremly blessed with all she has accomplished since beginning her medication at the end of March. I'm still not naive enough to think that her SM is "cured." Not talking is only a symptom of her overall anxiety, and we continue to see her struggles with anxiousness in other areas of her life.
So, please do me a favor... STOP for just a moment and thank God for anwering our prayers about Camryn talking in school and please pray that He would continue to loosen the chains that bind Camryn in the form of anxiety. THANK YOU SO MUCH!!!
Monday, May 5, 2008
On Stage
I thought it was a fluke, but it happened again this week. Every Sunday I sing in my church's praise band. At the end of the service, we sing a song as church members are leaving, so my family has to wait for me to finish before we can leave. Last week, I prompted Camryn to come up on the stage with me, which she has never done. She stood up there with me for part of the song. Yesterday, she came up on the stage without any prompting at all from me. She was totally comfortable. She held my hand while I sang, walked around, acted silly, etc. There were some little girls watching her... I'm sure she noticed. After the band was finished, we stood around talking to some friends. In the meantime, Camryn continued to hang around on the stage, pretending to sing and dance in front of the microphone. While this is something the real Camryn would totally do, she has never felt comfortable enough to do it with the possibility of people watching her. She told me yesterday, "That medicine sure does taste bad, but it really does work!" I just smiled. I'm overjoyed that more people are getting to see a glimpse of the real Camryn!
Saturday, April 26, 2008
God is Good!
Camryn has now talked to almost everyone in her class now and even many kids in her switching class and the kids at Kool After School. Not her teachers, though, but that's ok. There is a woman who works at the school who has Camryn give her this "special secret handshake" every morning as she walks down the hall. Up until recently, Camryn wouldn't give anyone a handshake at all, not even stick her hand out or anything.
I can't tell you how joyful it makes me feel to pick up Camryn from KAS and see her talking (or pretty much whispering since most of the time they are quietly doing homework in the cafeteria) with other kids. God has definitely answered our prayers! I am so very grateful to Him!!! God is good!
I can't tell you how joyful it makes me feel to pick up Camryn from KAS and see her talking (or pretty much whispering since most of the time they are quietly doing homework in the cafeteria) with other kids. God has definitely answered our prayers! I am so very grateful to Him!!! God is good!
Saturday, April 19, 2008
"The Lesson" Written by Camryn Tackert
Camryn had extra time as school yesterday and chose to write a little story. I thought I would share it with you exactly as she wrote it:
Once there was a girl named Camryn. She loved horses! On that day she rode to a feild full of horses! Across the feild she saw Mrs. Kim walking towerds her. Are you ready. Camryn jumped on the horse and suddenly the horse took off running. Hey I'm ridding, I'm ridding! Woo Hoo! She felt Bamma's long, smooth hair float agantst her shoulders. Finally Bamma stopped. Good boy Bamma! After a long while, she went walking with Bamma. That was a good lesson. She said.
The fact that Camryn had any extra time at school is extraordinary. She is usually so anxious that she has to go to Content Mastery to finish her work.
Once there was a girl named Camryn. She loved horses! On that day she rode to a feild full of horses! Across the feild she saw Mrs. Kim walking towerds her. Are you ready. Camryn jumped on the horse and suddenly the horse took off running. Hey I'm ridding, I'm ridding! Woo Hoo! She felt Bamma's long, smooth hair float agantst her shoulders. Finally Bamma stopped. Good boy Bamma! After a long while, she went walking with Bamma. That was a good lesson. She said.
The fact that Camryn had any extra time at school is extraordinary. She is usually so anxious that she has to go to Content Mastery to finish her work.
Thursday, April 17, 2008
O.T.'s a No-Go
Well, it looks like we probably will not be able to do the occupational therapy after all. Our insurance doesn't cover the cost because the treatment is considered experimental. I wrongly assumed that the cost couldn't be as much as a psychologist since a psychologist is a doctor and O.T.'s aren't, but I was wrong. The cost is $180 per visit. They are trying to see if they can pull some strings to get a cost reduction somehow. I'm really disappointed since I don't have any other resources left to check out in Brenham. Trust me... I've checked out every option, and it seems that every door has been closed. It looks like if Camryn receives any therapy at all, we'll have to look at Houston. Houston's fine during the summer, but it will be virtually impossible to get her there during the school year, and the therapy she gets needs to be on-going with the same person so that a trusting relationship can be built. I don't want to have her see someone for three months, make progress, and then stop going. We really need your prayers regarding some type of therapy program for Camryn.
Friday, April 11, 2008
Talking and OT and 504's... Oh My!
Wow! There's a lot to update you on. First, Camryn is telling us that she is continuing to talk (whisper) in class to new people. Everyday it's someone new (or more like two or three)! Although she hasn't talked to her teachers, one of them told us yesterday that she winked at her and Camryn winked back!
Camryn will have her first occupational therapy appointment on Tuesday. Although I've done some research on OT, I still feel pretty ignorant about it, so this will be an enlightening experience for me, as well as Camryn. They're going to focus on the Sensory Integration Disorder in which she has not ever been diagnosed with but often goes along with SM kids. I'm going to add a link on this page to give more info. It looks like insurance will not cover it, so please pray that it will not be terribly expensive.
Lastly, Gary and I met with the principal, counselor, and one of Camryn's teachers yesterday to discuss the possibility of placing Camryn on a 504. In case you don't know, a 504 is a document that lists certain accomodations for a child that has some type of disability affecting a major life activity (speaking, in Camryn's case). Although it took a lot of effort on my part to prepare for this meeting, it looks like it will be worth it. I stressed that we don't feel Camryn needs this document at her current school, as they do most of the accomodations already, we are unsure that as she goes on to middle school, that she will be accomodated there. The agreement that we reached is that she will be continued to be monitored throughout 3rd grade and 4th grade and that they will provide a 504 before she goes onto 5th. Would I have liked for the 504 to have been in place for 4th grade... just so it could be over and done with? Absolutely. But, my biggest concern is that she gets the help she needs going onto middle school, so I'm OK with that.
Camryn will have her first occupational therapy appointment on Tuesday. Although I've done some research on OT, I still feel pretty ignorant about it, so this will be an enlightening experience for me, as well as Camryn. They're going to focus on the Sensory Integration Disorder in which she has not ever been diagnosed with but often goes along with SM kids. I'm going to add a link on this page to give more info. It looks like insurance will not cover it, so please pray that it will not be terribly expensive.
Lastly, Gary and I met with the principal, counselor, and one of Camryn's teachers yesterday to discuss the possibility of placing Camryn on a 504. In case you don't know, a 504 is a document that lists certain accomodations for a child that has some type of disability affecting a major life activity (speaking, in Camryn's case). Although it took a lot of effort on my part to prepare for this meeting, it looks like it will be worth it. I stressed that we don't feel Camryn needs this document at her current school, as they do most of the accomodations already, we are unsure that as she goes on to middle school, that she will be accomodated there. The agreement that we reached is that she will be continued to be monitored throughout 3rd grade and 4th grade and that they will provide a 504 before she goes onto 5th. Would I have liked for the 504 to have been in place for 4th grade... just so it could be over and done with? Absolutely. But, my biggest concern is that she gets the help she needs going onto middle school, so I'm OK with that.
Tuesday, April 8, 2008
Whispering in the Bathroom
Camryn told us yesterday that she spoke to two more little girls in her class that she had never spoken to. Of course, I'm dying to know all the details (who, where, when?), but I have to be careful in my approach to question her about it. I can't act overly interested, in other words. What I did find out was that one of the girls asked her in the bathroom what her favorite color was. She whispered to her... "green."
On another note, I met with the psychologist yesterday. She kinda led me to a different direction, which I'll tell more about later. In the meantime, our 504 meeting has been scheduled at Camryn's school. It's on Thursday afternoon. I have a lot to prepare for... getting all my resources together by then will be a challenge. Please pray that I can convince the "powers that be" that even though her grades do not reflect an "educational need" now, we have to start thinking about her future. Honestly how long can she continue to make good grades without speaking at school?
On another note, I met with the psychologist yesterday. She kinda led me to a different direction, which I'll tell more about later. In the meantime, our 504 meeting has been scheduled at Camryn's school. It's on Thursday afternoon. I have a lot to prepare for... getting all my resources together by then will be a challenge. Please pray that I can convince the "powers that be" that even though her grades do not reflect an "educational need" now, we have to start thinking about her future. Honestly how long can she continue to make good grades without speaking at school?
Saturday, April 5, 2008
Camryn was told to "Ssshhhhh?!"
Yesterday was an early release day at school. In addition, the 3rd graders took a field trip to see the children's musical Seussical. I don't know if it had to do with being with her friends outside the boundaries of the school or what, but Camryn said she talked (whispered in their ears) to almost every girl in her class!!! In fact, during the musical, a teacher (not her own) had to tell her and her friend to "ssshhhhh." Wow! We are amazed at what the medication is doing!
Also, I have an initial consultation with a psychologist on Monday. Just me, no Camryn. It's been incredibly difficult to find someone who meets our qualifications: specializes in children/adolescents, female, practices in Brenham, a kind/patient/loving personality, experience with S.M and/or anxiety, and experience in Cognitive Behavioral Therapy (CBT). Please pray that this person is a good match.
Also, I have an initial consultation with a psychologist on Monday. Just me, no Camryn. It's been incredibly difficult to find someone who meets our qualifications: specializes in children/adolescents, female, practices in Brenham, a kind/patient/loving personality, experience with S.M and/or anxiety, and experience in Cognitive Behavioral Therapy (CBT). Please pray that this person is a good match.
Thursday, April 3, 2008
Seeing Some Positive Results
Camryn went to her art class yesterday after school. She hadn't been in a while because she's been struggling to get all of her homework done, but art is something she really excels at, and I want her to continue to pursue it. In fact, she has a website with some of her art work over the last couple of years. I've added a link to it on this page.
Anyway... typically, when I pick her up, she notices I'm there and glances at me quickly but then her eyes dart back to her drawing as if she doesn't want anyone to see any kind of reaction in her. She won't speak to me until we are well out of earshot of anyone there. However... yesterday when I went in to get her, she immediately got up and started talking to me, telling me how tired she had been all day. She was leaning all over me to the point where I had to tell her to stop so that I could write a check for the lesson. I tore off the check, handed it to her, and told her to go give it to Mrs. Parker. I expected to have to walk her over to her teacher (after a bit of prodding, of course) and tell her more than once to give her the check. Not yesterday! She quickly grabbed the check out of my hand, walked around the table, and handed it right to Mrs. Parker!!! Wow! I was amazed! (But you know that I couldn't show my delight. I had to keep it all bottled inside until I could tell someone when she wasn't listening). We are starting to see some changes we think is a result of the medication.
My mother also mentioned that when she picked up Camryn from school, a male co-worker was in the car with her. I guess they were going to view a property afterwards or something. Anyway, she said Camryn was talking up a storm to her in his presence. Hmmm.... :)
Anyway... typically, when I pick her up, she notices I'm there and glances at me quickly but then her eyes dart back to her drawing as if she doesn't want anyone to see any kind of reaction in her. She won't speak to me until we are well out of earshot of anyone there. However... yesterday when I went in to get her, she immediately got up and started talking to me, telling me how tired she had been all day. She was leaning all over me to the point where I had to tell her to stop so that I could write a check for the lesson. I tore off the check, handed it to her, and told her to go give it to Mrs. Parker. I expected to have to walk her over to her teacher (after a bit of prodding, of course) and tell her more than once to give her the check. Not yesterday! She quickly grabbed the check out of my hand, walked around the table, and handed it right to Mrs. Parker!!! Wow! I was amazed! (But you know that I couldn't show my delight. I had to keep it all bottled inside until I could tell someone when she wasn't listening). We are starting to see some changes we think is a result of the medication.
My mother also mentioned that when she picked up Camryn from school, a male co-worker was in the car with her. I guess they were going to view a property afterwards or something. Anyway, she said Camryn was talking up a storm to her in his presence. Hmmm.... :)
Monday, March 31, 2008
Anything for a Doughnut!
Camryn wanted a doughnut yesterday at church and asked if she could go get one by herself. She walked out of the sanctuary and into the lobby area and got one... all by herself, with no prodding on our parts. Our church building is small for the number of people that attend, so she walked through a crowd of people to do this! I'm wondering if the medication is kicking in or not. Today will be the fourth day.
Wednesday, March 26, 2008
Feeling Very Special!
Camryn had a wonderful birthday yesterday. It wasn't that she had this huge outlandish party with tons of presents and tons of people. (We are having a little "get together" later with a couple of friends). But without a doubt, I could tell that she really felt special. One of the things that made her feel special was Mrs. Tami coming over to bring her a gift, and along with it, the most special letter filled with encouraging words and scripture. And while we were at CiCi's Pizza, Camryn received a message from Mrs. Fathauer wishing her happy birthday. What a blessing it is to have these two wonderful ladies from church take a special interest in my child! For the SM child, building trusting, loving relationships with other adults is invaluable!
Tuesday, March 25, 2008
Good News!!!
I had a consultation with Camryn's pediatrician this morning. I took in all my internet findings, research, books, etc. with the intent of convincing him to consider prescribing an anti-anxiety medication for her. He listened very intently to all that I had to say and agreed! In previous discussions, he didn't seem very comfortable prescribing anything like this. So, this is an answer to prayer. If there's a small dosage of a medication that can decrease her anxiety level, and ultimately lead to her talking at school, then why in the world would we not give it to her? By the way, today is her 9th birthday. What a wonderful birthday present... a chance to lessen her anxiety/fears/worries. Please continue to pray for her.
Also, because it is her birthday today, I went to the school and had lunch with her. You should have seen her when she saw me standing at the end of the hall with a Quizno's bag in hand... smiling from ear to ear. How joyful it makes me to see her happy! We had a great lunch together. At first she would only communicate non-verbally. Then eventually, she would whisper in my ear, while looking around to see if any of her classmates were looking. Of course they were. Certain little well-wishing friends stopped by to say "happy birthday," and she just smiled. Of course, I said "thank you" for her... what else could I do? A little boy sat next to me and proceeded to ask me questions about Camryn like, "Does she talk at home?" I responded in the usual way, "Yes, all the time, non-stop!" I love to see their reactions when I say this, total amazement/disbelief. After lunch we went out on the playground. I asked her what she usually did at recess. It broke my heart when she pointed to a bench and said she usually just sits there. So, we walked around on the playground and swung on the swings until recess was over. After several hugs and kisses goodbye, she returned to her line to go back to class. It was such a blessing to get to take off work to be with her today.
Also, because it is her birthday today, I went to the school and had lunch with her. You should have seen her when she saw me standing at the end of the hall with a Quizno's bag in hand... smiling from ear to ear. How joyful it makes me to see her happy! We had a great lunch together. At first she would only communicate non-verbally. Then eventually, she would whisper in my ear, while looking around to see if any of her classmates were looking. Of course they were. Certain little well-wishing friends stopped by to say "happy birthday," and she just smiled. Of course, I said "thank you" for her... what else could I do? A little boy sat next to me and proceeded to ask me questions about Camryn like, "Does she talk at home?" I responded in the usual way, "Yes, all the time, non-stop!" I love to see their reactions when I say this, total amazement/disbelief. After lunch we went out on the playground. I asked her what she usually did at recess. It broke my heart when she pointed to a bench and said she usually just sits there. So, we walked around on the playground and swung on the swings until recess was over. After several hugs and kisses goodbye, she returned to her line to go back to class. It was such a blessing to get to take off work to be with her today.
Tuesday, March 18, 2008
To Be or Not to Be... A Flower Girl
Camryn has been asked to be a flower girl in my cousin's wedding. She immediately said no. When I asked her to think about it, she said, "I'll think about it... NO!" She said that it would be just as bad as being asked to talk in front of a bunch of people. As a mother, I would LOVE to see my daughter be a flower girl in a wedding. My cousin who is getting married was a flower girl in my wedding, so Camryn being a flower girl in her wedding would be very special. I'm going to pray that she reconsiders.
Monday, March 17, 2008
A Day Out With a Friend
Saturday, Camryn spent the day with a friend from school. She had only talked to this friend once or twice on the phone but never at school, to my knowledge. She was a little nervous about it the night before, but she ended up being "totally Camryn." We dropped her off at 8:00 in the morning, and the mom, little sister, friend, and Camryn went to IHOP for breakfast, a children's museum, GattyTown, and the mall. By the time they returned around 5:30 in the afternoon, Camryn was talking up a storm. She told me she started talking sometime during breakfast. We are so thrilled that she felt comfortable enough to be herself!
Sunday, March 9, 2008
Sunday School
Wow! Three days have gone by, and we've seen yet another accomplishment this morning. Camryn walked all the way across the sanctuary that was crowded with people and went into her Sunday School class all by herself. I can't wait to see what tomorrow will bring!
Newsboys Concert
Last night, Gary and I took Camryn to a Newsboys concert in Houston. The Newsboys, in case you don't know, are a Contemporary Christian band that's been around for a long time. Anyway, Camryn clapped her hands to the music and clapped her hands whenever the audience clapped. OK, this may not seem like a big deal, but she has never done this before. S.M. affects more than just talking. She doesn't do anything that will draw attention to herself non-verbally, either. Gary and I both noticed but did not make a big deal out of it. If we had, she would've stopped. Another success!
Running an Errand
One of the small goals Camryn's teachers and I recently set for Camryn was to run an errand at school all by herself. It could be taking the attendance to the office, taking a note to another teacher, or returning a book to the library. Well, Camryn had been finishing up an art project at home last week. On Friday, she took it to school. Her teacher gave the opportunity to take it all the way across the building to the art room, and SHE DID IT!!! Her teacher sent me an email, and the art teacher who goes to our church told me that she walked into her room with the picture, walked right up to her desk and handed her the picture. In the S.M. world, this would be in the non-verbal initiating stage! I am so excited about this accomplishment!
Up Until Now
We always thought our daughter, Camryn, was just really shy until one day when I happened to come across an article in the Houston Chronicle when she was about 3 ½ years old. The description of a child with Selective Mutism fit her to a “t.”
At home, Camryn, who will be 9 on March 25th, is a very vivacious and energetic little girl. She loves to play with her friends, collect Littlest Pet Shop pets, is inseparable from her many stuffed animals, watch the Disney Channel, shop for “fancy” clothes, and sing to Hannah Montana, High School Musical, Cheetah Girls, etc. She talks non-stop. We have to make her stop talking to eat and go to bed. She loves to talk on the phone to her friends when they call (a recent success!). She is a gifted artist and even has her own website to showcase her art.
Away from home, Camryn sees herself as “the girl who doesn’t talk.” She doesn’t talk to her teachers or other adults outside of the family. The only other adults beside her father and me that she talks freely to now without any warm-up time, are both sets of her grandparents and a mentally-challenged neighbor named Ricky who doesn’t talk very well himself. She will talk freely in front of our other neighbors (maybe actually responded verbally to the lady once or twice). She yacks up a storm when we’re at Wal-Mart until she sees someone from school then she tries to hide from them.
At school, Camryn makes mostly A’s and an occasion B. Her favorite subject is math, but she’s also very good at writing and is a fantastic speller. She has many friends at school although most of them have never heard her voice. She has a friend at church that she will whisper to during Sunday School if no one’s looking.
Camryn was seeing a counselor during her first grade year and made a lot of progress, to the point where she was talking in school to her friends (but not to teachers too much). She even got conduct marks that year for “talking at inappropriate times.” Then she changed schools and didn’t talk the whole year (until the very last day of school when she let the girls in her class hear her voice momentarily). Then she changed schools again. Kind of a long, complicated story, but yes, this caused a huge set-back for her. She did see a counselor during her second grade year, but they never really bonded, and an $85 a week, we didn’t see the need to continue.
Camryn has the rest of her third grade year and her fourth grade year to be at the school she’s at now. Then she will go to the middle school for fifth and sixth. She’s used to having two teachers, but in middle school, she will have four. My fear is that if she doesn’t start talking before she leaves elementary school, she won’t talk at all. I read a quote from Dr. Elisa Shipon-Blum that if a child doesn’t talk by age 8 or 9, they probably won’t talk until high school.
So, at this point, I’m a little in panic mode. I recently had a two-hour meeting with her teachers, who are very loving and supportive of helping Camryn in any way. We came up with a few goals for her to accomplish at school: reading to her “whisper buddy,” running errands for the teacher by herself, ordering a snack from the snack bar, and using a response journal to communicate with her teachers and friends.
I am back in the market for a new therapist for her and have even been looking into seeing if she can qualify for speech therapy at school. I talked to the speech therapist yesterday who mentioned the dreaded words “educational need,” so I’m not feeling very confident about that. During second grade, I had tried to get Camryn 504’d but ran into the “educational need” roadblock there also. I have two names of therapists, but we live in a town of 14,000 people, so it’s not that easy to find someone who 1). works with children, and 2). knows anything at all about S.M. One therapist is a man, and Camryn is much less likely to open up to a man, but if his approach and demeanor and right, there may be a slight chance.
So, there’s our story up until now...
At home, Camryn, who will be 9 on March 25th, is a very vivacious and energetic little girl. She loves to play with her friends, collect Littlest Pet Shop pets, is inseparable from her many stuffed animals, watch the Disney Channel, shop for “fancy” clothes, and sing to Hannah Montana, High School Musical, Cheetah Girls, etc. She talks non-stop. We have to make her stop talking to eat and go to bed. She loves to talk on the phone to her friends when they call (a recent success!). She is a gifted artist and even has her own website to showcase her art.
Away from home, Camryn sees herself as “the girl who doesn’t talk.” She doesn’t talk to her teachers or other adults outside of the family. The only other adults beside her father and me that she talks freely to now without any warm-up time, are both sets of her grandparents and a mentally-challenged neighbor named Ricky who doesn’t talk very well himself. She will talk freely in front of our other neighbors (maybe actually responded verbally to the lady once or twice). She yacks up a storm when we’re at Wal-Mart until she sees someone from school then she tries to hide from them.
At school, Camryn makes mostly A’s and an occasion B. Her favorite subject is math, but she’s also very good at writing and is a fantastic speller. She has many friends at school although most of them have never heard her voice. She has a friend at church that she will whisper to during Sunday School if no one’s looking.
Camryn was seeing a counselor during her first grade year and made a lot of progress, to the point where she was talking in school to her friends (but not to teachers too much). She even got conduct marks that year for “talking at inappropriate times.” Then she changed schools and didn’t talk the whole year (until the very last day of school when she let the girls in her class hear her voice momentarily). Then she changed schools again. Kind of a long, complicated story, but yes, this caused a huge set-back for her. She did see a counselor during her second grade year, but they never really bonded, and an $85 a week, we didn’t see the need to continue.
Camryn has the rest of her third grade year and her fourth grade year to be at the school she’s at now. Then she will go to the middle school for fifth and sixth. She’s used to having two teachers, but in middle school, she will have four. My fear is that if she doesn’t start talking before she leaves elementary school, she won’t talk at all. I read a quote from Dr. Elisa Shipon-Blum that if a child doesn’t talk by age 8 or 9, they probably won’t talk until high school.
So, at this point, I’m a little in panic mode. I recently had a two-hour meeting with her teachers, who are very loving and supportive of helping Camryn in any way. We came up with a few goals for her to accomplish at school: reading to her “whisper buddy,” running errands for the teacher by herself, ordering a snack from the snack bar, and using a response journal to communicate with her teachers and friends.
I am back in the market for a new therapist for her and have even been looking into seeing if she can qualify for speech therapy at school. I talked to the speech therapist yesterday who mentioned the dreaded words “educational need,” so I’m not feeling very confident about that. During second grade, I had tried to get Camryn 504’d but ran into the “educational need” roadblock there also. I have two names of therapists, but we live in a town of 14,000 people, so it’s not that easy to find someone who 1). works with children, and 2). knows anything at all about S.M. One therapist is a man, and Camryn is much less likely to open up to a man, but if his approach and demeanor and right, there may be a slight chance.
So, there’s our story up until now...
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